The Chiari Group Campaign

Chiari Group's page

Member

$2,010 by 22 people

Chiari Group

Total

Team Members

Chiari

$2,010 / 22 donors

Aiden

$1,975 / 14 donors

Katie

$590 / 5 donors

Rondi

$0 / 0 donors

Cathy

$0 / 0 donors

Kei

$0 / 0 donors

Chiari's Story

WE RECEIVED A $10,000 DOLLAR FOR DOLLAR MATCHING GRANT!. HELP US MAKE THE MOST OF THAT DONATION.  EVERY DONATION COUNTS DOUBLE!

The Chiari Group/ ACT FOR ALEXANDRIA's Story

WHO WE ARE

Since 2008, The Chiari Group has been raising funds for Chiari Malformation research.  We began by supporting research that addressed the challenges Chiari created for the pediatric population.  While the symptoms of Chiari and the level of suffering can vary greatly, the most common challenge for people with this condition is finding effective pain relief.

HELP US REACH OUR GOAL OF $150,000

Announcing our Grant to Boston Children’s Hospital!

We are excited to share that we will be donating our hard-earned funds to Boston Children’s Hospital, the nation’s #1 children’s hospital for neurology and neurosurgery. 

Our funding will be used in two ways:

·  To organize a yearly Chiari Day, which will bring patients, families, and medical professionals together to exchange ideas, share insights, and discuss the latest research developments.

·      For a collaborative research effort between the Neurosurgery and Pain Research teams at Boston Children’s to gather data and better understand the pain associated with Chiari and how to manage it.

We anticipate awarding a grant of $150,000 to Boston Children’s in early 2020.  This grant to Boston Children’s holds great promise for improving the quality of life for those with Chiari. Join us in reaching our goal making this grant as generous as possible. 

Many thanks for your support! 

RUNNING FOR RESEARCH

JOIN US!  

5th and FINAL Annual Running for Research 5k Run / 3k Walk at Meadowbrook Park
Sunday, November 10, 2019 

Address7901 Meadowbrook Ln, Chevy Chase, MD 20815

Register at ACTIVE.COM

Signups.png RibbonCutting.png RaceStart.png



Many thanks for your support!

https://youtu.be/H4GE1TnvfAE


Supporters

Chiari Group received a new donation from Brad, Michelle, and Mark LaForce

1 week ago

$50

We are glad to make a contribution to help undrrstand and cure this painful disease. God bless you!

Aiden Hellwig received a new donation from Uncle Jimmy and Auntie Donna

1 week ago

$100

Chiari Group received a new donation from Keller Family

1 week ago

$100

Chiari Group received a new donation from Elaine frost

1 week ago

$100

Help raise more money by sharing their link: