The Chiari Group Campaign

Aiden Hellwig's page


$1,975 by 14 people


Aiden Hellwig


Team Members


$1,975 / 14 donors


$2,010 / 22 donors


$590 / 5 donors


$0 / 0 donors


$0 / 0 donors


$0 / 0 donors

Aiden's Story

our hard work has finally paid off! Thank you for all of the years of support for our cause and for all of the love you have show Aiden and our family. It is bittersweet to say that this will be our last run/walk but we are so proud to say that we have earned the attention and respect of  the nations’s #1 children’s hospital for neurology and neurosurgery to help us support out cause. This final annual push for funds may be our most important yet. We are so close to our goal of granting $150,000 to Boston Children’s Hospital but need your help. Please consider donating today or joining us on November 10th for our final Running for Research 5k run/3k walk. Any level of support will be greatly appreciated!

The Chiari Group/ ACT FOR ALEXANDRIA's Story


Since 2008, The Chiari Group has been raising funds for Chiari Malformation research.  We began by supporting research that addressed the challenges Chiari created for the pediatric population.  While the symptoms of Chiari and the level of suffering can vary greatly, the most common challenge for people with this condition is finding effective pain relief.


Announcing our Grant to Boston Children’s Hospital!

We are excited to share that we will be donating our hard-earned funds to Boston Children’s Hospital, the nation’s #1 children’s hospital for neurology and neurosurgery. 

Our funding will be used in two ways:

·  To organize a yearly Chiari Day, which will bring patients, families, and medical professionals together to exchange ideas, share insights, and discuss the latest research developments.

·      For a collaborative research effort between the Neurosurgery and Pain Research teams at Boston Children’s to gather data and better understand the pain associated with Chiari and how to manage it.

We anticipate awarding a grant of $150,000 to Boston Children’s in early 2020.  This grant to Boston Children’s holds great promise for improving the quality of life for those with Chiari. Join us in reaching our goal making this grant as generous as possible. 

Many thanks for your support! 



5th and FINAL Annual Running for Research 5k Run / 3k Walk at Meadowbrook Park
Sunday, November 10, 2019 

Address7901 Meadowbrook Ln, Chevy Chase, MD 20815

Register at ACTIVE.COM

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Many thanks for your support!


Chiari Group received a new donation from Brad, Michelle, and Mark LaForce

2 months ago


We are glad to make a contribution to help undrrstand and cure this painful disease. God bless you!

Aiden Hellwig received a new donation from Uncle Jimmy and Auntie Donna

2 months ago


Chiari Group received a new donation from Keller Family

2 months ago


Chiari Group received a new donation from Elaine frost

2 months ago


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