Refsum Gene Therapy Fundraiser

Help Raise $15,000 towards Gene Therapy research for Refsum Disease

Kate Thompson's page

Member

$275 by 1 person

$750

Kate Thompson

Total

$6,238

$15,000

Global DARE Foundation

Team Members

Kate

$275 / 1 donor

Kristie

$2,301 / 34 donors

Susan

$1,450 / 6 donors

John

$175 / 2 donors

Marlena

$50 / 1 donor

Kathryn

$39 / 1 donor

Sára

$0 / 0 donors

Event

Event Details

Please note: tickets are required to attend this event.

Refsum Gene Therapy Fundraiser

October is Blindness Awareness Month and October 8th is World Sight Day. Help Global DARE Foundation raise money for a pilot study in Gene Therapy for Refsum Disease. Setup a fundraising page and/or participate in the DARE Step Challenge. All proceeds will go to support the pilot study. Global DARE Foundation is holding a 6-week step challenge that goes from October 5th to November 15th. Any exercise can be converted to steps for this challenge. Prizes will be awarded to the top 3 steppers at each step level. Participants donating or fundraising at least $200 will receive a free event t-shirt.

Date & Time

Mon, October 5th 2020
2:02 PM EDT -
Sun, November 15th 2020
2:02 PM EST

Add to Calendar 2020-10-05 14:02:07 2020-11-15 14:02:29 America/New_York Refsum Gene Therapy Fundraiser October is Blindness Awareness Month and October 8th is World Sight Day. Help Global DARE Foundation raise money for a pilot study in Gene Therapy for Refsum Disease. Setup a fundraising page and/or participate in the DARE Step Challenge. All proceeds will go to support the pilot study. Global DARE Foundation is holding a 6-week step challenge that goes from October 5th to November 15th. Any exercise can be converted to steps for this challenge. Prizes will be awarded to the top 3...

Location

This event will be hosted digitally.

Details to view the event are private and will be provided upon ticket purchase.

Kate's Story


Global DARE Foundation's Story

Global DARE Foundation's mission is to promote world-wide awareness and better quality of life for all who are diagnosed with Adult Refsum Disease.  DARE stands for Defeat Adult Refsum Everywhere. We DARE to believe there is a cure for Adult Refsum Disease.

Adult Refsum disease is a genetic disorder that impacts the metabolism of phytanic acid which is found in food.  The disease significantly impact quality of life of patients by causing vision loss, hearing loss, loss of smell, mobility issues and more.  People with Refsum Disease must also go on a very strict diet to slow progression of current symptoms and avoid life threatening symptoms.   A better therapy is needed!

As seen in Global DARE Foundation's recent webinar, Refsum disease is a strong candidate for Gene Therapy.  We are running this fundraiser to raise the necessary funds to start the pre-clinical work for Gene Therapy.   

Please support us in our mission to find a cure!

 

Supporters

Kristie DeMarco received a new donation from Jessica Kraus

20 hours ago

$50

Team Kristie all the way now and always! Go GIRL!!!!!!! You inspire me to be better.

Kristie DeMarco received a new donation from Heidi

20 hours ago

$64

Here we go!!!

Kristie DeMarco received a new donation from Alicia Wilson

21 hours ago

$39

Kristie DeMarco received a new donation from Kelly Ramos

21 hours ago

$39

Kristie DeMarco received a new donation from Heather Brodbeck

21 hours ago

$39

Kristie DeMarco received a new donation from paul naseef

22 hours ago

$39

Anonymous made a donation

1 day ago

Susan Kuranoff received a new donation from Karen and Tony

1 day ago

$75

Happy to donate towards research into Refsum!

Kristie DeMarco received a new donation from Michelle Dietz

2 days ago

$50

Kristie DeMarco received a new donation from Susie Breuer

2 days ago

$39

Jerred Brockett's family and friends made a donation

3 days ago

$673

Kristie DeMarco received a new donation from Yvette

4 days ago

$39

Looking forward to supporting the cause and doing a step challenge with everyone!

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