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25% of $30,000 goal
Fundraiser since Jul 2022
240% of $500 goal
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Lesley Clark's Story
Jackson was diagnosed with Fragile X syndrome when he was 22 months old. We had never heard of Fragile X until then. He currently attends preschool in an integrated setting with his neurotypical peers half of the day and spends the other half in Special Education working with his OT, PT and SLP. When he is not at school, he loves playing hockey at home with his big brother or watching him play at the rink! He also loves music, dancing, bubbles and snuggling up! We hope you can join us for our annual walk this year as we continue to spread the word about Fragile X and the amazing individuals living with it!
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FXRCMO Annual Walk for Fragile X
Sunday from 9:00 AM - 12:00 PM CDT
ON-SITE REGISTRATION ONLY. The Annual Walk for Fragile X is a one mile walk that supports those living with or affected by Fragile X syndrome. A light lunch, silent auction, raffle and entertainment are provided. You can register online until September 9 at 4pm. At that point, registrations will be accepted onsite. Donations will be accepted online for two weeks after the event.
The Fragile X Resource Center of Missouri is a parent-run 501c3 that provides free educational programs, family support services and advocacy work for those living with or affected by Fragile X syndrome. Fragile X syndrome is the most common cause of inherited intellectual disability.