Heritage Girls Volleyball

Heritage KCNT1 Charity Match on October 3, 2023


Heritage Girls Volleyball is so excited to be hosting a KCNT1 Epilepsy Charity Night!


Many of you may already know, but for those of you that do not, Coach Kenzie’s daughter, Charly was diagnosed with KCNT1 Epilepsy when she was just 2 months old. KCNT1 is a rare form of pediatric epilepsy impacting over 300 children worldwide, and more and more are diagnosed every month. Seizures are frequent, up to 100+ a day in some cases, and are extremely resistant to all medications and treatments.


Your donation today will not only go towards further research efforts, it will bring hope to so many children and their families!


Thank you so much for your support of Heritage Girls Volleyball KCNT1 Charity Night!


Verified

Organized by KCNT1 Epilepsy Foundation
501(c)(3) Public Charity · EIN 84-2748218
[email protected]