A few weeks ago, we received the phone call that changed our lives forever.

Our daughter, Shreve, was officially selected for a groundbreaking gene therapy clinical trial in Slovenia to treat her rare genetic disorder, CTNNB1 Syndrome.

For years, we’ve prayed for something that could change her future.

And now…

that chance is finally here.

Shreve has been chosen to become the youngest child in the world and only the fifth patient ever to receive this groundbreaking gene therapy treatment.

Because she is so young, we are incredibly hopeful this therapy has the potential to make a life-changing impact—not only for her today, but for the years and milestones still waiting to be written.

For almost four years, you’ve watched Shreve’s Story unfold.

You’ve celebrated every small victory with us.

You’ve prayed through every setback.

You’ve cheered for milestones that many families never have to think twice about.

Because Shreve has fought for every single one.

Most people will never know what it feels like to watch your child struggle for things that come so naturally to everyone else.

To say their first words.

To keep their balance.

To run.

To communicate.

To become more independent.

Those aren’t ordinary moments for our family.

They’re dreams we’ve held onto since the day she was born.

Yet through every therapy…

every doctor’s appointment…

every obstacle…

Shreve keeps smiling.

She keeps fighting.

And she keeps reminding us that hope is always worth holding onto.

This treatment has the potential to change not only the next chapter of Shreve’s Story, but to help shape the future for children diagnosed with CTNNB1 Syndrome around the world.

To make this opportunity possible, our family must raise $300,000 over the next six months to cover international travel, temporary housing, medical-related expenses, and the months we’ll temporarily relocate overseas while Shreve receives treatment and begins her recovery.

We never imagined this opportunity would come so quickly.

But when your child is given a chance like this…

you don’t hesitate.

You simply say yes.

Today, we’re asking you to help us write the next chapter.

If you’re able to give, your donation brings Shreve one step closer to treatment.

If you can’t donate, sharing her story may help it reach someone who can.

And if you pray, we would be deeply grateful for your prayers as we begin this incredible journey.

Every act of kindness…

every share…

every prayer…

every gift…

becomes part of Shreve’s Story.

Our greatest hope is that one day, Shreve will look back on this chapter and know that an entire community believed in her before she could ever understand what they had done.

Thank you for believing in our little girl.

Thank you for believing in hope.

And thank you for helping us write the next chapter of Shreve’s Story.

The Shreve McWilliams Foundation

Providing charitable support to individuals and families affected by CTNNB1 Syndrome and other rare genetic disorders through financial assistance for medical care, education, awareness, and access to life-changing treatments.