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Lick Leukodystrophy!

September is leukodystrophy awareness month - help us raise funds to Lick Leukodystrophy!

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Campaign Ended

$6,161

92 Supporters

123% of $5,000 goal

Anne Brendel

Fundraiser since Sep 2021

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$1,051

13 supporters

105% of $1,000 goal

Anne Brendel's Story

September is Leukodystrophy Awareness Month! As many of you know, at this time  last year, we thought our daughter had Metachromatic Leukodystrophy (MLD). The United Leukodystrophy Foundation (ULF) was an extremely helpful source of information for us and helped us find the best doctors. Eventually, and thankfully, MLD was ruled out. Although our daughter has white matter abnormalities and developmental delays, her white matter was not deteriorating and her skills were not regressing -- as would typically be seen with a Leukodystrophy diagnosis. I was so touched by this devastating degenerative disorder and compelled to help, that I joined the Board to continue to support ULF, a great honor. Please join me in raising funds for this incredible organization. ULF supports leukodystrophy research, impacted families, and provides other valuable resources to the leukodystrophy community. Thank you for your support.

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Campaign Ended

$6,161

92 Supporters

123% of $5,000 goal

The United Leukodystrophy Foundation

A 501(c)(3) Public Charity

EIN 35-1557361