Lick Leukodystrophy!

September is leukodystrophy awareness month - help us raise funds to Lick Leukodystrophy!


92 supporters

$5,000 goal

Team Member

Natasha Spencer


by 47 supporters

$1,000 goal

On September 26th, I'll be running the Chicago Half Marathon (my first!). With September being Leukodystrophy Awareness Month, it's the perfect opportunity for me to merge my grief-miles with a cause that will uplift another child's quality of life through education, outreach, and research . Will you back me up as I log my 13.1 miles by supporting The United Leukodystrophy Foundations along the way?

In memory of our son, Kenan Spencer Witczak, Krabbe Leukodystrophy, February 5, 2011 - May 31, 2018. 

Thank you, 


Team Members



47 supporters



13 supporters



17 supporters

Team ULF Staff


5 supporters



4 supporters



3 supporters



2 supporters



1 supporter



0 supporters


Created By

The United Leukodystrophy Foundation

EIN: 35-1557361


September is leukodystrophy awareness month - and we want YOU to help us Lick Leukodystrophy! Start a team and tell your story to raise funds that will go towards our mission of hope for improved treatments and a cure.

Any amount raised will go further than you think, but we do encourage you to set a goal! The team that raises the most funds, and the team that has the most donors will get a special prize from the ULF!

Remember, you are not alone and the ULF community is not giving up. Together, we can Lick Leukodystrophy!

Pick Your Team!


92 supporters

$5,000 goal

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The United Leukodystrophy Foundation

A 501(c)(3) organization

EIN 35-1557361