LOUIE'S HUWE: A NONPROFIT DEDICATED TO AWARENESS, SUPPORT AND RESEARCH INTO HUWE1

Louie is a little boy with a HUWE1-related genetic condition. In 2021, Louie's family, along with a group of concerned and dedicated parents, collaborated with a skilled physician to establish a 501c3 charitable nonprofit organization in the United States - Louie's Huwe (EIN: 86-1930096). With a fantastic team including medical and genetic experts, Louie's Huwe is dedicated to raising awareness, supporting families and driving research into HUWE1-related genetic conditions around the world.

Improving lives through community and research

People with HUWE1-related genetic conditions can have a range of symptoms such as intellectual disability, epilepsy, autism and feeding problems. To help improve the lives of people living with HUWE1, Louie's Huwe is partnered with Johns Hopkins University School of Medicine and Seattle Children's Hospital and Research Institute to work towards better understanding the genetic basis of this disorder, and to develop new treatments.

Through science and medical advancements, Louie's Huwe aims to improve the lives children and adults living with these conditions as well as future babies that are diagnosed.

Louies Huwe

Rare Disease Day 2025

Louie's HUWE Website