About This Campaign:

This October Dysautonomia Awareness Month, nonprofit Los Angeles Dysautonomia Network (LADN) is celebrating the strength, resilience, and unique voices of our community! Join us by sharing how dysautonomia has impacted your life!

Dysautonomia affects more than 70 million people worldwide, yet it remains widely misunderstood. The average patient waits about five years just to get a diagnosis, let alone treatment! By sharing our stories, we bring visibility to this invisible condition — and by fundraising together, we ensure that no one faces dysautonomia alone.

This month, we invite you to join us by creating your own fundraising page, sharing your journey, and asking your friends and family to support the Los Angeles Dysautonomia Network (LADN). Every story shared sparks awareness, and every dollar raised helps us grow programs, support groups, and resources for people impacted by dysautonomia. Together, we can turn awareness into action!

Los Angeles Dysautonomia Network (LADN) is a 501(c)(3) nonprofit organization dedicated to providing mental health, community, education, and financial support for individuals with dysautonomia in the LA and greater CA area.

Join Us!

Create a page to share your connection to dysautonomia and show support for your LADN community! We want to hear what your journey has been like! The hardships and the triumphs! Share as little or as much as you feel comfortable with! Want some inspiration? Check out what other "team members" listed above have posted and head to our website to read patient stories shared by community members and LADN Ambassadors!

To create your own page, click the "Fundraise" button on this page (above), create a Givebutter login (or sign in), click "Join this fundraiser," and fill out your own "team member" page! Once you've added your story and made your page your own, share it with your friends to spread awareness and help support LADN this dysautonomia awareness month! Don't forget to use our hashtag #DysMonthLADN when you share on social media! Want to include one of LADN's awareness videos on your page? Feel free to check out our youtube! Need some tech help? Visit Givebutter's how to guide for creating your own page. Thank you for being a part of the LADN community!! 💜💙💜

About LADN

Most people trust their body to regulate their heart rate, digestion, temperature and other automatic functions. But with autonomic nervous system disorders (dysautonomia), the body’s control system goes haywire, leaving patients constantly struggling. The Los Angeles Dysautonomia Network (LADN) is a 501(c)(3) nonprofit organization dedicated to providing mental health, community, education, and financial support for individuals with dysautonomia in the LA and greater CA area.

LADN's Programs:

LADN’s Mental Health Support Program helps people cope with the burden of illness and includes support groups for adult and teen patients and for caregivers. Patients describe LADN as their “sanctuary” and “safe space” with “collective wisdom” and “consistency.”

A chronic, invisible illness like dysautonomia can cause extreme social isolation. Many of our community members are too ill to work or attend school and a number are homebound. LADN’s Community Program includes LADN Links peer network, which pairs small groups of dysautonomia patients to encourage friendships, SickLit Book Club, which reads books written by or about people with illnesses, and other community-building events such as movie nights and holiday gatherings.

LADN’s Education Program empowers patients through webinars and workshops with experts in fields relevant to the dysautonomia experience. This may include experts in dysautonomia research, nutrition, physical therapy, psychology, disability law, or even personal finance. On average it takes patients with the most common type of dysautonomia – POTS – 5 years to receive a diagnosis. This is unacceptable given that there is an easy at-home test for POTS. LADN’s awareness campaigns aim to create a world where no one has to face the difficult mysteries of this illness alone and without answers.

LADN’s Healthcare Access Program provides direct financial assistance for low-income patients to afford dysautonomia-related medical care. 55% of LADN survey respondents reported being unable to work due to dysautonomia (2025). The average annual income for the 2024 recipients was $16,000. The average amount they had spent on dysautonomia healthcare in the 12 months prior was $10,000. Maya, a Healthcare Access Grant awardee, said “To be disabled in America is a constant battle against poverty, appropriate healthcare, and accessibility. LADN understands these hardships, and I’m immensely grateful for their work to alleviate the financial burden so many of us face.”

LADN's History

LADN grew out of personal need and developed to champion a community. Founded by four women with dysautonomia, LADN launched as a support group in early 2018, expanded in 2020 under the current name, and became a nonprofit in February of 2023. LADN has grown into a supportive community of over 650 people impacted by dysautonomia across LA county and the greater California area.

LADN is led by co-founders Executive Director Sally Krueger-Wyman and Outreach Director Emily Suñez, who each have lived experience with dysautonomia. Their efforts are joined by psychologist Dr. Samantha Levy, facilitator of the teen and caregiver support groups, and occupational therapist Lian Norris, instructor of the Mindful Movement class.

LADN’s Board of Directors consists of the following members: Danielle Hinde (Board Chair) - Tobi Harper Petrie (Secretary) - Dante Quazzo (Treasurer) - Barbie Faze - Nancee Jaffe, MS, RDN - Sally Krueger-Wyman - Brianne Slusarenko, DPT - Emily Suñez, MA - Lindsey Wyman, JD, MPP - Lori Wynstock, MD

LADN’s goal is to improve the lives of people with POTS and other forms of dysautonomia in California. We welcome those living with all forms of dysautonomia, as well as their care team, to join the Los Angeles Dysautonomia Network.

October Dysautonomia Awareness Month 2025

By Los Angeles Dysautonomia Network

October Dysautonomia Awareness Month 2025

Team Members