Update #7 (8/15/2021)
It’s been a grueling few months of radiation and chemo treatments, but Dad has officially completed them! He is one TOUGH guy and is still moving forward with his positive mindset even after everything he’s gone though.
He’s now recovering and resting while his body to continues to fight. We will not know any updates for about 3 months. His body must recover and heal and then they will do scans to let us know any news. In the meantime we wait and Dad is trying to enjoy things and was very excited to see Guns n Roses recently at Met Life Stadium! This summer he's had to stay inside from the sun but he was able to make it to Jack's swim meets a few times. We had a celebration this week to mark the end of his treatments and celebrate Ryan's 12th birthday.
Our family appreciates the continued support and love and messages sent his way. Dad turned in his work phone, so he has a new phone number. Please email him (or us) if you would like to text him and don’t have the new number yet. He’s still unable to talk, so text or email is the best way to reach him directly.
We’ll update in the fall when we have hopefully good news to share!
We love you all. Carpe Diem.
Ed and The Cwiek Family
I would like to update everyone on my status. My scans came back and the tumor has stayed the same size. It did not shrink like we had hoped, but the good news is it didn't continue growing.
I just started my final phase of treatments which consist of 8 weeks of Chemotherapy every week and Proton radiation 5 days a week.
I'm in good hands with Dr. Sokol at Penn Medicine and Dr. Chon at ProCure Radiation in Somerset.
I want to thank everyone for their support and words of encouragement. This is gonna get worse before it gets better but I expect this and I'm prepared to handle anything they do to me.
THANKS again for the donations, advice, cards, words of inspiration and just the general support of all my family and friends.
Hi everyone- thank you for your continued support! Dad has been keeping busy as much as he can. We decided to have an early Father's Day hang while he's in the early phase of his treatments and still feeling up for it. We had his Metallica swag custom framed so he can enjoy seeing it everyday. We all wore Metallica shirts in solidarity and support for Papa C. Thank you again to our friend Chris for making that Metallica care package happen!!
We had a very special day celebrating Nini's 87th Birthday (it was over Memorial Day weekend)! It was the first time our extended family has been together and it was so nice to see everyone. Nini is our maternal grandmother and we love her very much!!
Dad has also enjoyed a visit with Nini, a visit from his sister Mariellen and he appreciated the help from some of his old soccer players taking a tree down in the yard.
Thanks again for following our Dad's story. He's got 6 more weeks of radiation and chemotherapy. He's grateful for each day he has and appreciates any text he gets! Time to finish out this battle strong!! CARPE DIEM 🤟
Love, The Cwiek Family
Update #5 (4/30/2021)
What a month it’s been! Since our last update, Dad has finished his 4th round of chemo and immunotherapy treatments. The feeding tube has allowed him to maintain his weight and even put a few pounds back on!
At the end of March, a very special friend sent a care package that certainly lifted Dad’s spirits. He was sent a personalized box from his favorite band in the whole world, Metallica!! He was surprised with a hand written get well note, signed drumsticks, a variety of guitar picks from Metallica shows all over the world and a bottle of Metallica’s very own whiskey brand. As a member of Metallica’s fan club “Fifth Member”, Dad was so thankful and touched by this very special gesture. Thank you again, Chris!!! We can’t thank you enough and express how much this meant to him and our family. You rock!!!
On Easter, our family received an extra special announcement. We are so happy to announce that our brother Danny and his wife Stephanie are expecting their first child in October! We were totally surprised when they hopped in for this picture and told us this wonderful news. It’s a boy! Dad will have another little baby motivating him through his treatments!! It will be his 6th grandson and 7th grandchild. Congrats to Danny and Steph, we are so happy for you!! Michelle and Maj's little lady, Sienna, is doing well, she’s now 6 weeks old and brings a smile to Dad’s face everyday. We also celebrated Joey’s 4th birthday and look forward to little Eddie’s 8th birthday next week! (Also Happy 31st Birthday today 4/30 to Danny!)
Dad has been working with his team of doctors twice a week to work on his swallowing, talking and tongue exercises. He had scans this week to see what progress has been made. Within the next couple weeks we will hopefully have some good news to share. When he’s not doing his feedings every 2 hours, he has been enjoying doing light yard work in this beautiful spring weather, going on walks and spending time with his grandkids. He’s determined to keep his mind and body strong going into his next phase of treatments. He's also started a collection of band patches that he kept Donna busy with sewing them all on his favorite Metallica jacket!
Please continue to keep him in your thoughts and prayers. You all have been a light through this process and continue to motivate him to push though and keep his positive mindset. Thank you for your continued donations and well wishes.
We love you all! CARPE DIEM!! Love, Ed and the Cwiek Family
Update #4 (3/30/2021)
It’s been an eventful couple of weeks! After his second round of chemo and immunotherapy treatments, Dad was having difficulty eating, swallowing and keeping weight on. His doctors placed a feeding tube which he now gets all his nutrition from and will hopefully gain some energy and weight back.
On March 15th, our family welcomed the birth of Sienna Mae! She is Dad’s 6th grandchild and the first granddaughter! She has brought so much light and love to our family right now. Congrats to Michelle, Maj and big brother Colton!
Dad started his 3rd round of treatments today and will continue for the next 4 days. Thank you for checking in and continuing to send your love and support!! It’s a tough road but he is keeping busy and has PMA! (positive mental attitude).
Above is a pic from the hospital today and message from Dad:
Tubes, Tubes! Going into the 3rd quarter. Let the games begin…CARPE DIEM! Thank you everyone!!
Update #3 (3/11/2021)
This week Dad started his second round of treatments. Our family is grateful for all of your continued support and love!!
This is me at U PENN in Plainsboro where I'm going for my Chemotherapy/ Immunotherapy infusion.
Great support staff making procedures go smoothly.
Looks like 4 months of treatments down the road.
I'm in for the long haul and will be coming out stronger on the other side.
Thanks again for ALL your support! - Ed
Update #2 (2/24/2021)
Once again, we’d like to thank everyone for their love, support and extremely generous donations! We are so grateful to have such wonderful people in our lives!!
Dad has completed his first week of chemo. While he’s doing an awesome job kicking cancer goodbye, he still has a long road ahead! So please keep rooting him on as he gears up for round 2!
Here's a message from Dad/Ed:
I want to thank everyone for their generous gifts, funny stories, words of encouragement, sharing of similar stories are all greatly encouraging to me.
The responses, not just from people that know me but from the people that only know me through their associations with my family and friends has been overwhelming.
I'm truly blessed to have such a support group.
I've completed my first full week of treatments and I starting to feel the effects but the onset has been gradual so that's good for me.
I have a couple weeks to recover and start another cycle on 3/9.
CARPE DIEM! - Ed
Update #1 (2/19/2021)
All we can say is - WOW! We would like to extend a HUGE thank you to everyone who has reached out, donated, shared this page and sent their well wishes! Your love and support is SO appreciated. This picture was taken yesterday (2/18/2021). Today, Dad is finishing up Day 4 of chemo. He is feeling good and will be wearing his chemo pack at home through tomorrow (Saturday).
He wanted to let you know how thankful he is:
I'm extremely grateful for all the support and funny responses, it makes me laugh, I know I need more of that medication.
This is crazy! Never expected anything like this! Makes me feel very, very blessed to have touched so many lives.
Really good for my mental state.
If you have any pictures or funny anecdotes, send them to the site and we'll post.
CARPE DIEM! - Ed
Welcome To Ed Cwiek's Fundraiser (2/17/2021)
Hi! Thanks for visiting Ed's donation page. Whether you know our dad from Coca-Cola, reffing, being a member of the Metallica fan club, or are family or friends, he can really use your support right now.
Over the past few months, our dad started to feel a lump beneath the base of his tongue. He made an appointment to have it evaluated and in that time it started giving him a hard time speaking and swallowing. Working with his cancer team at UPenn, and after multiple tests, it was diagnosed as a Stage 4 squamous cell tumor (called cancer of the head and neck). It’s considered Stage 4 because of the location but it has not yet spread to other parts of his body. Due to the size and location it is inoperable. Doctors believe they can knock it out with the chemo and immunotherapy but it’s going to take a tremendous toll on his body. As some of you may remember, he had cancer 20 years ago and with radiation therapy he beat it...AND HE PLANS ON BEATING IT AGAIN!!!
Yesterday he had his port put in and today (2/16) he started chemotherapy at Penn Medicine Princeton Medical Center in Plainsboro. He’s staying positive but we know it’s going to be a long tough road back.
If you know my dad, you know he never stops moving. He's always been active and this has helped him stay as healthy as possible going into this battle- even the doctors were impressed a 64 year old man was on zero medications and this will hopefully put him in the best position to recover from this. Medical bills are already starting to add up, which is why we created this page for donations. If you are able to donate, we would greatly appreciate it and no donation is too small! We understand these are tough times for so many, so you can also show some love by sharing this page with your friends and family. Well wishes and positive thoughts are needed too! We can’t wait to have our Dad back spending time with his grandkids, especially since he has his first granddaughter arriving next month!
We are hopeful and grateful he has a positive mindset and will do what he can to get through this. Your support at this time will mean everything to our family- whether thats through donations or positive messages. It is very difficult for him to speak on the phone due to the tumor, and he is not on social media, so if you would like to send him some love you can write it on this page with your donation or email [email protected] and we will get the messages to him. If you have any questions or would like to donate separately please email us as well.
Thank you from the bottom of our heart for visiting our dad's page.
To quote our dad: CARPE DIEM! 🤘🏻🤘🏻🤘🏻
The Cwiek Family
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