Powered by Givebutter

L-CMD Research Foundation x 2024

Raising $ and awareness for rare disease treatments for kids impacted by terminal L-CMD, like Austin.

Donate Now

Share Fundraiser

$2,002,415

2.5k Supporters

Cynthia Shapiro

Fundraiser since Mar 2021

Share Cynthia Shapiro's Page

$7,275

23 supporters

145% of $5,000 goal

Cynthia Shapiro's Story

If you are reading this, THANK YOU!!

I met Hannah about 15 years ago when we worked together at M&T Bank. Hannah was always kind, compassionate, positive, supportive, and encouraging. About one year ago her baby boy Austin, at only 5 months old, was diagnosed with a rare and fatal form of muscular dystrophy, L-CMD. Despite the daily challenges and heartbreak Hannah and her family now face every day, Hannah is still the beautiful, positive, and supportive person I have come to know even more over the last couple of years.

Hannah and her husband Mark have started the L-CMD Research Foundation to urgently advance medicine that will establish treatments and a cure. Their goal is to raise $2 Million by Austin’s second birthday to fund gene therapy research for L-CMD.   On behalf of Hannah and her family, and others who may be faced with this rare and fatal disease, please consider a donation.  This is an opportunity to be part of something truly amazing, with the potential to transform the life of a beautiful boy.   There is currently no cure, but with your help, we can make the necessary research a reality!  Please help if you can.  I know we can make this happen.  Let’s be a part of this miracle together!!!

Story

Donate Now

Share Fundraiser

$2,002,415

2.5k Supporters

L-CMD Research Foundation

A 501(c)(3) Public Charity

EIN 85-2640499