Register now for the PURA Syndrome Conference, an event taking place June 27-29, 2025. Join researchers, experts and our PURA community for in-depth sessions that will focus on:

Research and studies about PURA
Parent Discussions
PURA Community Social Time
And so much more!

Registration is now open and required for all attendees. The conference and sessions are open to family, caretakers, researchers, clinicians, and friends. For those unable to attend in person we will also offer a virtual option, and many of the sessions will be recorded to view at a later date.

The cost to attend the conference is $100 for anyone ages 18 and over, $50 for anyone ages 4- 17, and any children under 4 and individuals with PURA are free. This fee includes access to all conference sessions, Friday evening reception (with appetizers), and lunch and dinner on Saturday. Breakfast is included for Saturday and Sunday for those staying at the Conference Hotel.

Please note: We have tried to keep costs low so that more people would be able to attend. If you are able to give more than the required fee, we encourage you to do so to help offset the conference costs.

Book your room at the Conference Hotel!

The conference takes place from June 27-29, however, we have a reduced rate from Thursday through Sunday night for anyone who would like to stay longer. Please click this link to book our Conference hotel. If you have any questions, please contact Melissa Vaught at m.vaught@pura-syndrome.org.

2025 PURA Syndrome Conference - In Person Registration

By PURA SYNDROME FOUNDATION

2025 PURA Syndrome Conference - In Person Registration

June 27-29, Dallas, Texas, USA