Giving Tuesday

This Giving Tuesday, please consider donating to help move CRMO Research forward.  We are getting so close to our fundraising goal for this year’s donation to the CHOIR Registry research project at Seattle Children’s Hospital.  

CHOIR aims to gather real-world data to understand CNO better. This data can help define important criteria like inactive disease, remission, flare-ups, and minimal clinical differences. Research on CRMO has been challenging due to a lack of verified definitions, leading to varying medication adjustments across doctors and institutions. The CHOIR team includes patients and parents in the study design. The data will also help compare medications and could serve as a control for future clinical trials for FDA approval. The first research paper has been published, and a second is coming soon. Results will be shared openly with families.

We couldn’t have donated as much as we have over the past few years without your help!  We are so thankful for every single person that has or will support continuing to move research forward and helping us continue our mission of bringing comfort, understanding and support to CRMO Warriors worldwide!