Our  Miles was diagnosed with a rare genetic disease called Syngap-1 in 2023 at 4 years old. He is currently only one of about 1,300 people found to have this disease.

At the time, Miles had already been diagnosed with autism and epilepsy and global developmental delay. The Syngap diagnosis came after genetic testing at the Children’s Hospital of Philadelphia.

Syngap1 symptoms include developmental delays, intellectual disability, epilepsy, autism, sensory processing disorder and more. There's currently no cure, but we’re hoping to help change that by collecting donations to help fund research. 

#SprintforSyngap is an annual fundraiser and donations raised will go to the Syngap Research Fund (SRF), who works tirelessly to improve the future for kids just like Miles. If you're able to donate, please consider supporting "TEAM MILES"!

Thank you for any contribution you can make! This is a virtual fundraiser- there will not be an actual in person event!