Our son Andrew was diagnosed with Syngap1, a rare genetic disease, in 2018. At the time, Andrew was 16, but when he was just two years old, he had already been diagnosed with epilepsy, autism, intellectual disability, global developmental delay, hypotonia, sleep disturbances, speech and language impairment.

After Andrew's neurologist ordered a new round of genetic testing, we finally had the answer we had been searching for for so long, a reason for all of Andrew's challenges, and for the very first time the a la carte diagnoses we had been living with finally fit together and made sense.

Since then, we have been lucky enough to find an incredible and growing community in Syngap Research Fund, an organization founded by two Syngap parents and made up of parents just like us, along with grandparents, caregivers, family and friends, and professionals. Together we hope for life-changing treatments for our loved ones, and dare to dream for a cure.

Every penny donated goes directly towards funding critical research. We believe now more than ever that Andrew can and will benefit from interventions that weren't even on the horizon a few short years ago, thanks to the tireless efforts of Syngap Research Fund, and the generosity of people like you.

We are so grateful for your love and support. When time is brain, there is no such thing as a donation too small.