When my family first heard the diagnosis *Leukoencephalopathy with Brain Calcifications and Cysts* (LCC)—also known as Labrune Syndrome—it felt like the world shifted beneath us. Our journey with LCC began when my son Ben was diagnosed in 2021, and since then, it has been a mission to connect with others affected, raise awareness, and advocate for research and support. This mission became even more personal when we connected with Victoria, an incredible LCC Warrior whose strength and resilience inspire me every day. LCC is a rare, life-altering disease with no cure, limited treatment options, and a deep need for awareness and medical advancements. Through this virtual 5K, we are running—not just for Victoria but for every child and family impacted by this diagnosis. Funds raised through this event will go directly to supporting families like Victoria’s and Ben’s, while also fueling the research needed to find answers and hope. Every step, every donation, and every shared story brings us closer to a future where no family feels alone in this fight. Please consider joining the 5K, donating, or sharing our mission. Together, we can make a difference for Victoria and all LCC Warriors. With gratitude, Ashley Dike Founder and Executive Director, The LCC Foundation