CLOVES Syndrome Community General Fund

CLOVES Syndrome Community is the foremost patient advocacy organization for people with CLOVES Syndrome. We are improving the lives of those affected by CLOVES Syndrome through support, education, and research.

Through programs like our Family Assistance Program, and Betsy's Camp & Retreat, we support individuals with CLOVES Syndrome and their families. Through initiatives like our children's books, and CLOVES Awareness Day, we drive education and awareness about CLOVES Syndrome worldwide. And, finally, by connecting with scientists and clinicians, championing their work, and making research grants whenever possible, we are enabling a deeper understanding of this ultra-rare condition and unlocking future treatment options. 

We are a tiny + mighty organization that envisions a future where every person with CLOVES Syndrome will lead long, full, happy lives, supported by access to excellent medical care and effective treatments.