About Us
Chalkbird Inc. is a 501(c)(3) nonprofit organization dedicated to raising awareness, supporting families, and advancing research for Vascular Ehlers-Danlos Syndrome (VEDS) and other Heritable Disorders of Connective Tissue (HDCTs).
Our story began with one family’s fight — and a commitment to make sure no one faces VEDS alone. After founder Dan Sperry and his son were diagnosed with VEDS, it became clear how urgently the world needs better awareness, faster diagnosis, better emergency response, and more research. Chalkbird Inc. was created to meet that need.
Today, Chalkbird Inc. empowers communities through year-round events, educational programs for EMS and medical providers, and fundraising initiatives that directly support VEDS research efforts. Our goal is simple:
Save lives through awareness, education, and innovation.
What We Do
Fund Research
We raise money to support leading VEDS research programs, genetic studies, and advancements in diagnosis and treatment.
Educate First Responders & Medical Providers
We provide free training resources, pocket guides, presentations, and clinical materials to help professionals recognize and respond to VEDS-related emergencies.
Support Families
We offer guidance, community, and resources for individuals and families affected by VEDS and related disorders.
Host Community Events
From local fundraisers to awareness drives, Chalkbird Inc. brings people together to create hope, celebrate strength, and raise funds for research.
Our Vision
A world where people with VEDS receive early diagnosis, expert care, and life-saving emergency response — and where research leads to longer, healthier lives for everyone facing HDCTs.
Why We Exist
VEDS is rare, misunderstood, and often misdiagnosed. Many patients face emergency situations where every second matters. We believe that:
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Education can save lives.
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Research can change futures.
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Community can drive real impact.
Chalkbird Inc. stands at the intersection of all three.
Join Us
Whether you’re attending an event, donating, volunteering, or spreading awareness, you’re helping create real change for families navigating VEDS. Together, we can bring hope, improve outcomes, and support the breakthroughs that patients desperately need.
