Conor's, Simon & Brian’s London to Brighton Bike Ride for BBSOAS

Sunday, June 15, 2025

Campaign cover image for Conor's, Simon & Brian’s London to Brighton Bike Ride for BBSOAS

Organized by NR2F1 FOUNDATION

$12,143

121% of $10,000 goal

161 Supporters

Brian Keane

Fundraiser since May 2025

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$890

16 supporters

Brian Keane's Story

I'm taking on the challenge of cycling from London to Brighton to raise funds for the NR2F1 Foundation and in support of Edith Coughlin and her family. Edith has the very rare condition BBSOAS (Bosch-Boonstra-Schaaf Optic Atrophy Syndrome) which is caused by a disruption in the NR2F1 gene

The NR2F1 Foundation does tremendous work providing support for patients and families, while raising awareness and supporting medical research aimed at better understanding and ultimately finding a treatment for BBSOAS.

I’m looking to contribute as best I can for this wonderful foundation, all support towards this cause will be a step towards greater awareness and a brighter future for children facing this condition. Any contribution, big or small, will make a meaningful difference.

Thank you for your support!

Brian

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NR2F1 FOUNDATION

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EIN 83-2659721

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