I am fighting for a better future for my son, Elliott, who has an ultra rare form of pediatric epilepsy called SCN8A.
Elliott was born in 2012, just as SCN8A was discovered to cause epilepsy in children by Dr. Michael Hammer. When we received Elliott's diagnosis, there were only about a dozen cases of SCN8A known in the world. I found Michael and we have been working together ever since to find better care and treatments for those living with SCN8A....
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