Dear CLOVES Community,

Our vision is a future where people with CLOVES Syndrome lead long, vibrant lives, with access to skilled healthcare and effective treatment options. In 2025 we made strides toward that vision. From Dr. Madsen's big PIK3CA research wins, to the launch of a new clinical trial; from our growing patient registry, to the development of our Young Adult Mentorship Program (and so much more!) we are building the world we want for our community. And 2026 is no exception!

2026 promises to be a year of new opportunities and far reaching impact for people with CLOVES Syndrome and their families. As we get ready to launch an exciting new program in January (more on that soon!) and look to more initiatives later in the year, we are so excited for what's in store. Here's a snapshot:

🍀 A Year-Long Virtual Learning and Connection Series

🍀 Young Adult Mentorship Program

🍀 Patient experience survey

🍀 Updated care guidelines

🍀 New opportunities to contribute to research

Don't miss your last opportunity to help CSC spring into the new year, ready to make big strides toward all we have planned. Not only will your donation help CSC fulfill our mission at a time when support is so critical for our community, but it might just help reduce your tax burden too.

To learn more about the impact of your donations, see our 2025 Fiscal Year Impact Report.

Gratefully,

Lauren Beauregard, Executive Director

with The CSC Board of Directors

Sara Robertson, Steven Handel, Irina Pivneva, and Megan Pelsinski

CSC End-of-Year Campaign 2025

By Cloves Syndrome Community

CSC End-of-Year Campaign 2025

Don't miss this opportunity to help CSC launch new programs for the CLOVES community in 2026!