Every child deserves more time: time to laugh, to read bedtime stories, to dance to their favorite songs, and to share everyday moments with family. For children like Amelia and Makenzie, who are living with juvenile Batten disease, those moments are precious and never taken for granted.

When their twin daughters were diagnosed with Batten, the Kahn family refused to wait. Their hope became action. They turned heartbreak into determination and created ForeBatten, a foundation funding breakthrough research and treatments with the potential to give children more time and a better quality of life. That determination continues to drive ForeBatten’s work today as the foundation invests in medical innovation that could transform not only rare diseases but medicine for millions.

Your gift keeps that hope alive. It turns compassion into progress, fuels innovation, and moves science forward so families can look toward tomorrow. Hope keeps them going, and your gift makes it real.

Join Us in Giving the Gift of Hope

Your gift today will provide:

Real progress in cutting-edge Batten disease treatments
Support for children like Amelia and Makenzie who inspire this mission
A powerful reminder that when we act together, hope becomes real change

About ForeBatten

Founded by the Kahn family, ForeBatten is driving progress for children with Batten disease through research funding, advocacy, and partnerships with world-class scientists. The foundation has raised millions to advance innovative treatments that give families more time, more joy, and more hope than ever before.

About Batten Disease

Batten disease is a rare genetic disorder that causes seizures, vision loss, loss of mobility, and cognitive regression. Without treatment, families face devastating decline and loss. But thanks to research powered by ForeBatten, new clinical trials are offering hope and new possibilities for the future. Batten is part of a larger family of neurological diseases, meaning that discoveries here could ripple outward to other conditions like Alzheimer’s, Parkinson’s, and epilepsy.

The Gift of Hope

Hope is more than a feeling. It’s something we do together.

Team Members