In 2019 Aleksander Habiak was diagnosed with an ultrarare disease called ZTTK syndrome which resulted in intellectual and overall developmental delay.

There are currently no cures or treatments. Howevery, since the diagnosis day there has been a significant progress in gene therapy treatments and this is our unique chance for Aleks and for all ZTTK patients.

Working hand in hand with scientists and ZTTK SON-Shine Foundation you can accellerate the development of a cure.

Why 5k? This is the first stage of an international fundrising campaign and surely it will not be enough but it will help kickstart our only chance for a normal life. 

Join us, share and raise awareness of ZTTK. Every dollar brings us closer to the cure.

Warm regards,

Aleks with Family