Hi everyone!

As some of you know, our little Jayda was diagnosed with PWS at 3 weeks old. PWS is a rare genetic diagnosis that affects each child differently. At this time, she experiences some low tone and recently is feeding from a Gtube to make sure she gets the nutrition she needs- as she was not safely feeding. In the future, she will have to follow a strict diet, as PWS children have a low metabolism and do not ever feel FULL, and she will continue working with many therapies to meet milestones and becomes stronger. We are not sure what else will arise, but we are so thankful for the PWS community and the current treatments, and hopefully future treatments, that are available! Thank you for considering to donate to PWS research, to make Jayda’s journey as bright as it can be! 🌟