Rare Disease Day 2025

For Kids Like Emmy...

Thank you for supporting your loved ones with KCNT1-related disorders this National Rare Disease Day on February 28th! Just like a zebra’s stripes, every child’s journey with a rare disease is unique. KCNT1 may be labeled "rare," but every month we connect with new families receiving this life-changing diagnosis. Together, we are showing the world that KCNT1 is not so rare after...