Join Katie's Fight to End VCP Disease

Your donation will fund critical research to develop treatments and ultimately find a cure for VCP disease. Every contribution brings us closer to hope and healing for families like mine.

I'm Katie Carter, and I have VCP disease, a rare neuromuscular disease that has impacted my family for generations. I'm committed to raising awareness and being part of the solution.

I started showing symptoms at age 30. First, my arms weakened so I couldn't raise them above my shoulders. Then, a few years ago, my legs were impacted. My mobility continues to get worse. I'm in my 40s now, and I am losing the ability to do the things I enjoy. I'm unable to be the active woman, mother, grandmother, and friend I want to be. I miss traveling with ease and simply living an independent life.

I want to be a part of the solution. I hope to share information to help others learn about VCP disease and to assist Cure VCP Disease in finding treatments and a cure—not just for me, but for future generations.

Won't you please consider being a part of the solution? Check with your employer—many companies match their employees' charitable donations, which could double your impact!

Thank you for your generosity and for helping me and many others with this terrible disease. It takes a village!

For more information about VCP disease and ongoing research efforts, please visit curevcp.org.

VCP disease (Inclusion Body Myopathy associated with Paget's disease of bone and Frontotemporal Dementia) is a rare progressive genetic disorder affecting muscles, bones, and cognitive function. Currently there is no cure, making continued research vital for affected families and future generations.