They blocked us — but they can’t silence us.

LVADStrong and our founder were blocked by the International Consortium of Circulatory Assist Clinicians (ICCAC) after we called out a Halloween event that turned patient suffering into a spectacle. But patients and caregivers deserve respect, not ridicule, and we’re taking that message directly to the places where care decisions are made.

We’re raising funds to bring LVAD patients and caregivers to major national conferences ICCAC attends — with our own booths, signage, and speaking opportunities. Your support will help us ensure that real patient stories are heard, valued, and shared with clinicians, coordinators, and industry leaders.

Your donation will fund:

Booth space and banners at major heart failure and MCS conferences
Travel, lodging, and registration for LVAD patients and caregivers
Printed materials, videos, and stage presentations to share real stories
Advocacy initiatives so patients are seen as partners, not punchlines

Why it matters:

Patients are living proof of what works — and what doesn’t. ICCAC tried to silence us, but we believe patients and caregivers must have a seat at the table. Every donation helps elevate our voices where it counts.

They Blocked Our Voice — So We’re Taking the Stage

By LVADStrong Patient Support Organization, Inc.

They Blocked Our Voice — So We’re Taking the Stage

Your donation = a patient voice heard at national conferences.

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