Unfortunately, Angelina lost her fight on May 29th, 2025. She will be forever 21! Too young to fly away! Help us save our Lafora children today! She will be dearly missed 💔

My dedication to funding treatments comes from my personal experience as a mother of a child with Lafora disease. My daughter Angelina is now 20 and has been suffering with symptoms for 6 years. Lafora is quick to manifest and progress; we lose our children too fast. Please help us continue to #fightlafora by giving children like Angelina access to this safety study and helping them find a cure.

Here is a video update from me about Ange

#PayItForward today! #laforadisease #refractoryepilepsy #epilepsyawareness #glycogenstoragedisease #childhooddementia #raredisease #terminalillness #findacure #fundacure