Dalton is now 27, and as many of you know, he was diagnosed with Glut 1 Deficiency when he was 5 years old. He has been on a very restrictive medical form of the Ketogenic Diet since age 3 to treat his uncontrollable seizures and to help with his development. As wonderful as the results of the Keto Diet have been for Dalton, 25 years of managing it has not come without enormous challenges for him and the entire family. And the Ketogenic Diet is far from a perfect treatment in terms of providing remedy for Dalton's seizures and numerous other challenges. He continues to struggle with transient movement symptoms and has significant delays in the areas of speech, fine and gross motor skills, cognition and social skills despite the diet being the only treatment currently available to manage his symptoms.
But this year's exciting news is that the G1DFoundation, with your generous support, is planning to fund two independent clinical trials that we are so hopeful will provide better treatment options for Dalton and all who live with the many challenges of Glut 1 Deficiency. It would be a miracle to us if Dalton could come off of his restrictive diet and find improvements in the areas where he continues to struggle. The ability to improve his independence would be a game changer for him! You give us hope by supporting our work and it is so appreciated! Please join us in donating today! Thank you!! ♥️
