In 1994, the Moebius Syndrome Foundation launched as the first national patient advocacy organization dedicated to the Moebius community. Now, 30 years later and with more than 4,600 members, the Moebius Syndrome Foundation continues supporting families and individuals with Moebius syndrome.

More than ever, the Moebius Syndrome Foundation needs your support to sustain current programs, events, and research opportunities. In 2024, we have the following goals:

Raise more awareness about Moebius syndrome to the healthcare communities and general public.
Advocate for more equality and opportunities for individuals living with Moebius syndrome and similar conditions.
Award Educational Scholarships up to $3,000 per student.
Reimburse medical travel expenses up to $2,000 per approved applicant, for individuals with Moebius and their families that need to travel for health care appointment.
Invest in research opportunities to identify the causes of Moebius syndrome and better treatment options for common symptoms.
Provide welcome packets and information for new families and individuals joining our community.
Provide school and bullying prevention resources to help students have a better school year.
Become more accessible by creating educational content in different languages, and making sure our content is accessible to those with hearing and vision impairments.
Host free educational and social virtual events that support families, parents, individuals with Moebius, and a grief support group for those that have lost a child who had Moebius syndrome.
Provide free resources and financial support for those that are hosting awareness and regional events.
Raise money to keep national conference costs low and provide scholarship opportunities.
Organize new in-person social events for adults with Moebius syndrome and for families who have children with Moebius.

Please share this fundraiser on your social media pages and through email. If you would like to create a personal fundraising team to get support from your personal connections, please feel free to create your own campaign. Questions? Please email info@moebiussyndrome.org or call us at (844) MOEBIUS ext. 703.

We have a lot of work to do, and are eager to get started! Thank you for your consideration in supporting our mission, and for sharing this opportunity with your family, friends, and communities. Together, we are MoebiUS!

Moebius Syndrome Foundation Fundraiser

By Moebius Syndrome Foundation

Moebius Syndrome Foundation Fundraiser

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