In Lieu Of Flowers

Project CASK is a nonprofit organization committed to developing treatments and finding a cure for CASK gene disorders— ultra-rare, severe conditions affecting brain development that currently lack any available therapies. 

Founded by parents driven to make a difference, we work with urgency to accelerate research and collaborative efforts across scientific fields to make treatments a reality.

Children with CASK gene disorders face a range of complex challenges, including motor and sensory difficulties, epilepsy, feeding issues, and significant developmental delays. The disorder can be life-limiting and symptoms can vary widely from person to person. Because the CASK gene is X-linked, developing effective, targeted treatments is especially challenging.

Our mission is simple yet ambitious: to give people affected by CASK gene disorders the chance to live full, healthy, and more independent lives. Through strategic partnerships, a focus on community-building, and a relentless pursuit of scientific progress, we are moving closer to that goal every day.