Rhythms For Rare

In honor of Rare Disease Day, Project CASK invites you to a one-of-a-kind global event: Rhythms for Rare.

Tune-In on YouTube today, February 21 at 1pm EST / 6pm GST

Being part of the CASK community means navigating a life that much different than we ever expected, yet filled with moments and experiences that are incredibly beautiful and deeply meaningful. It takes a community of loving parents, family members and friends, and supportive local communities to advocate creative climb mountains for our ultra rare children. This virtual watch-party style concert is our way of bringing our precious communities together in gratitude and joy.

From the soulful strings of a cello to the upbeat energy of family vocals, 13 musical presenters—including CASK parents, grandparents, siblings, and friends—will share their gifts with our community around the world. Whether you are a CASK family or a friend joining the circle, this is a day to connect, have fun, and celebrate the heartbeat of our extended CASK family.

How to Join the Celebration

• Subscribe & Watch: Join us on YouTube (@projectcask) on Saturday, February 21st. Catch the Live Premiere at 1:00 PM ET / 6:00 PM GMT or the Encore Stream at 7:00 PM ET / 12:00 AM GMT.

• Host a Watch Party: Turn your living room into a concert hall! Check out our Watch Party Kit below, for fun theme ideas like "Comfy Cozy Chords" or tasty treats like the "Liocorn Crustini!"

• Win Big: We love our supporters! Registered members of Project CASK are automatically entered to win giveaways including a Roar for RARE tote, Liocorn pillow, and a $100 Visa Gift Card. This is open to CASK parents, family members, and friends alike—Register with PC here, if you haven't already.

Make a Lasting Impact

While this concert is a celebration, our mission to research and care for our children continues every day.

In honor of the 28 days of February, we invite you to become a ROARing Regular, and consider a monthly gift of $28. Your recurring support provides the consistent rhythm we need to fund life-changing research and support our families year-round.

About Project CASK

Project CASK is a nonprofit organization committed to developing treatments and finding a cure for CASK gene disorders— ultra-rare, severe conditions affecting brain development that currently lack any available therapies. 

Founded by parents driven to make a difference, we work with urgency to accelerate research and collaborative efforts across scientific fields to make treatments a reality.

Children with CASK gene disorders face a range of complex challenges, including motor and sensory difficulties, epilepsy, feeding issues, and significant developmental delays. The disorder can be life-limiting and symptoms can vary widely from person to person. Because the CASK gene is X-linked, developing effective, targeted treatments is especially challenging.

Our mission is simple yet ambitious: to give people affected by CASK gene disorders the chance to live full, healthy, and more independent lives. Through strategic partnerships, a focus on community-building, and a relentless pursuit of scientific progress, we are moving closer to that goal every day.

Thank you for supporting Project CASK and being part of our journey to bring hope and healing to children and families affected by this ultra-rare disorder!