July 13-15, 2026 in Asheville, North Carolina
Join us to meet, share and learn together!

We are delighted to be hosting our next GLUT1 Deficiency Summit in beautiful Asheville, North Carolina. We can’t wait to welcome our community for another meaningful opportunity to come together to meet, share, and learn - bringing clinicians, researchers, and families together to share knowledge, strengthen collaborations, advance research, improve care, and support one another along the way.

Agenda at a Glance:

Day 1 - Monday, July 13th

afternoon kickoff
fun and flexible activities
special interest group meetings
exhibits
cooking demonstrations
evening welcome social

Day 2 - Tuesday, July 14th

whole group sesssions
clinical focus with interactive sessions on symptoms, treatments, and strategies

Day 3 - Wednesday, July 15th

family track and scientific track separate sessions
closing social

Registration Fees:
Registration Closes on June 15th

Early Bird Registration Fees: through March 15th

people with GLUT1 Deficiency | free
siblings | $99
parents, caregivers, and other family members | $199
students and post-docs | $199
professional clinicians and researchers | $249
industry partners | $349

Registration Fees: March 16th through May 31st

people with GLUT1 Deficiency | $49
siblings | $149
parents, caregivers, and other family members | $249
students and post-docs | $249
professional clinicians and researchers | $299
industry partners | $399

Late Registration Fees: June 1st through June 15th

people with GLUT1 Deficiency | $99
siblings | $199
parents, caregivers, and other family members | $299
students and post-docs | $299
professional clinicians and researchers | $349
industry partners | $449

Each person with GLUT1 Deficiency and their siblings will receive a complimentary Summit shirt from the G1DF. Please indicate size in the registration process. More shirts are available for order and can be picked up at registration in Asheville.

A note about checkout and fees:
To keep registration costs low, we use Givebutter, a free fundraising and registration platform for nonprofits. During checkout, Givebutter may automatically suggest and insert a tip amount to support their services. This tip is entirely optional and can be changed to any amount - including $0 - before completing your registration.

Venue:

Embassy Suites Asheville Downton
192 Haywood Street
Asheville, North Carolina 28801

Group Rate Discount: $199 per night
Discount rate is good through June 15th or until the block is filled.

The link for discount hotel reservations will be in your registration confirmation email.

A note about capacity:
While this Summit will be held in a smaller venue than our last one, we’re excited about a more intimate experience. Early registration is encouraged in case we reach capacity or fill our discount hotel block.

GLUT1 Deficiency Scientific and Family Summit

By GLUT1 DEFICIENCY FOUNDATION

GLUT1 Deficiency Scientific and Family Summit

2026 in Asheville, North Carolina