July 13-15, 2026 in Asheville, North Carolina
Join us to meet, share and learn together!

We are delighted to be hosting our next GLUT1 Deficiency Summit in beautiful Asheville, North Carolina. We can’t wait to welcome our community for another meaningful opportunity to come together to meet, share, and learn - bringing clinicians, researchers, and families together to share knowledge, strengthen collaborations, advance research, improve care, and support one another along the way.

Special Announcement:

We are incredibly grateful for the overwhelming response to the 2026 GLUT1 Deficiency Scientific and Family Summit in Asheville this July. The enthusiasm and excitement from this community mean so much, and we are honored by the strong interest in coming together again.

At this time, we have reached our current capacity of 380 attendees and general registration is now closed.

We know there may still be families and professionals hoping to attend. Because plans can sometimes change, we are maintaining a waitlist in the event space becomes available due to cancellations.

👉 Join the Summit Waitlist

Thank you again for your show of support and eagerness to meet, share, and learn with us. We can’t wait to be with you and welcome everyone to Asheville this summer.

Agenda at a Glance:

Day 1 - Monday, July 13th

afternoon kickoff
fun and flexible activities
special interest group meetings
exhibits
cooking demonstrations
evening welcome social

Day 2 - Tuesday, July 14th

whole group sesssions
clinical focus with interactive sessions on symptoms, treatments, and strategies

Day 3 - Wednesday, July 15th

family track and scientific track separate sessions
closing social

Registration Fees:
Registration Closes on June 15th

Registration Fees: March 16th through May 31st

people with GLUT1 Deficiency | $49
siblings | $149
parents, caregivers, and other family members | $249
students and post-docs | $249
professional clinicians and researchers | $299
industry partners | $399

Late Registration Fees: June 1st through June 15th

people with GLUT1 Deficiency | $99
siblings | $199
parents, caregivers, and other family members | $299
students and post-docs | $299
professional clinicians and researchers | $349
industry partners | $449

Each person with GLUT1 Deficiency and their siblings will receive a complimentary Summit shirt from the G1DF. Please indicate size in the registration process. More shirts are available for order and can be picked up at registration in Asheville.

A note about checkout and fees:
To keep registration costs low, we use Givebutter, a free fundraising and registration platform for nonprofits. During checkout, Givebutter may automatically suggest and insert a tip amount to support their services. This tip is entirely optional and can be changed to any amount - including $0 - before completing your registration.

Venue:

Embassy Suites Asheville Downton - SOLD OUT
192 Haywood Street
Asheville, North Carolina 28801

OTHER HOTELS:
Sister hotel next door:
DoubleTree Inn by Hilton Asheville Downtown - 1 minute (433 feet)

Nearby hotels:
Hotel Indigo Asheville - 2 minute walk (.1 mile)
Cambria Downtown Asheville - 6 minute walk (.3 miles)
Haywood Park Hotel - 8 minute walk (.4 miles)
The Restoration Asheville - 8 minute walk (.4 miles)
AC Hotel Downtown Asheville - 12 minute walk (.5 miles)
Windsor Boutique Hotel - 12 minute walk (.5 miles)
Renaissance Asheville Downtown - 15 minute walk (.6 miles)

The link for hotel reservations will be in your registration confirmation email, but the discount block at Embassy Suites is sold out. There may be regular priced rooms available.

A note about capacity:
While this Summit will be held in a smaller venue than our last one, we’re excited about a more intimate experience. Early registration is encouraged in case we reach capacity or fill our discount hotel block.