The Glut1 Deficiency Foundation has played an important role in how we have been able to support Sofia since she was diagnosed when she was 3 years old. Not only the support we can give Sofia, but the support we receive as parents have been invaluable through all these years.

We participate in this fundraiser because we want the Glut1 Deficiency Foundation to be able to continue their mission of supporting families like ours, raising awareness of the condition and helping finance research that will contribute to have a better understanding of the disease, better treatments and eventually a cure for all our Loved ones with Glut1!

Please help us raise funds for this great cause and to shine our love on Sofia and and all the loved ones with Glut1 :)

Thank you for your support!