This battle isn’t just about Kennedy. It’s also about my son Lincoln, who faced the same diagnosis and underwent a bone marrow transplant. I’ve lived through the sleepless nights, the constant worry, the endless hospital visits, and the moments when the hope of a cure felt like a distant dream. But despite it all, I never gave up. Instead, I turned my pain into purpose. That’s why I founded the Kennedy Ladd Foundation—to bring hOPE (Helping One Person Everyday) to families facing the same heartache and challenges that we do. Through the foundation, I’m raising awareness, advocating for newborn screening, and working tirelessly to fund medical research. I know firsthand that every dollar raised brings us one step closer to better treatment options and, ultimately, a cure for MPS1. I’m not just fundraising to help my own family—I’m fundraising to create a future where no child has to endure the suffering caused by MPS1. I dream of a day when a diagnosis doesn’t mean fear and loss, but instead, hope and healing. That’s why I’m committed to doing everything I can to raise awareness, fund research, and advocate for these children—because they deserve a chance at life, a chance to grow up without the limitations of this cruel disease. My story is a testament to the power of a mother’s love, my unwavering faith, and my commitment to bringing hope to others. Through my advocacy and tireless efforts, I’m fighting not only for Kennedy and Lincoln, but for every child affected by MPS1. I’m determined to make a lasting impact and leave a legacy of hope, kindness, and change.