2023 ULF Family Conference
Event
2023 ULF Family Conference
Thursday, June 22 @ 5 PM CDT
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2023-06-22 17:00:00
2023-06-25 10:04:00
America/Chicago
2023 ULF Family Conference
ABOUT
The ULF Family Conference is an annual event where affected families can access the world’s top leukodystrophy physicians and researchers – outside of the restrictions of insurance and the hospital setting. Held over two days, the Conference aims to provide the latest scientific information to keep families informed on advances in the field but also guide families on topics that will improve their overall quality of life while living with a leukodystrophy. The Conference is an invaluable experience geared toward the whole family: Affected individuals, parents and caregivers, spouses, siblings, extended family, friends, and anyone else in their support network.
Cost to attend in person is $25 per adult and $10 per child, under the age of 18. The fee covers entry to the event and eight meals at the venue. Attendees are responsible for securing their hotel room(s) and making their own travel arrangements. Scholarships are available to families who are newly diagnosed or are in financial need.
Eaglewood Golf Course<br>
1401 Nordic Rd, Itasca, IL 60143, USA
Virtual Registrants:
You will receive access to session zoom links with your email receipt confirmation.
*Remember to bookmark access page when you receive them for easy viewing reference closer to conference. The links will be posted and updated prior to conference start.
