VNS for PWS Clinical Trial Fundraiser
Advancing a clinical trial for a potentially transformative treatment for people with PWS.
Erin Carter
Fundraiser since May 2022
$380
5 supporters
38% of $1,000 goal
Erin Carter's Story
Queen Victoria the PWS Warrior is the happiest, silliest, most resilient kid you'll meet. Every day she battles the challenges that PWS brings -- autism, narcolepsy, scoliosis, hip dysplasia, hypotonia, speech delay, etc etc etc -- all with a smile on her face!
With PWS, and compounded by her Autism diagnosis, comes behavioral difficulties. We have begun to see the start of what we fear may be really big obstacles for her and for our family as she gets older, bigger, and stronger.
FPWR is raising funds for a study examining VNS as a behavioral treatment for kids with PWS. While Victoria is too young to participate in this trial, it is something we hope will be available and well understood should we need it 5 or 10 years down the road. As a psychologist, I have heard a lot of excitement in my field about the future of VNS and other brain stimulation in helping treat various mental health difficulties and this is really exciting to me!
Please consider donating... every penny helps as this trial is going to be an entirely grassroots funded endeavor! Thank you for your support!!