VNS for PWS Clinical Trial Fundraiser
Advancing a clinical trial for a potentially transformative treatment for people with PWS.
Jill Underwood
Fundraiser since May 2022
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$225
4 supporters
11% of $2,000 goal
Jill Underwood's Story
I just sat in on a zoom meeting concerning a potentially life changing treatment for people with PWS. Although eating/food safety is such a huge part of PWS and can be life threatening, the behavior issues are currently the hardest thing to deal with for us personally. I never thought I would say the food issues are more manageable than the behavior issues. 🤷♀️
The Foundation for Prader-Willi Research is currently raising funds for this clinical trial. We have donated and are hopeful for this potential treatment for our Ridley. I just realized that May is also Mental Health Awareness Month, be sure you are taking care of yourself! 🥰