Tuesday, October 1st 2024 I will be entering Hospital of the University of Pennsylvania (HUP) Philadelphia, PA to be induced and deliver my newest little addition to my family, Waylon Chaos Hartman ❤️🍼 early on in my pregnancy, sometime in my second trimester, Lehigh Valley Health Network in Pottsville, PA had done my normal ultrasound but found something very abnormal with Waylon's heart and told me I would need to be referred to the Maternal Fetal Medicine Doctor at Lehigh Valley Health Network in Allentown, PA. By the end of my visit with MFM in Allentown, they had diagnosed Waylon with Heterotaxy Syndrome and many Complex Heart Defects along with the possibility of Pediatric Asplenia due to his Heterotaxy diagnosis. I have never heard of Heterotaxy but as the doctors explained it to me, our organs can form in the wrong locations of our body and Waylon's stomach was formed on the opposite side of where it should be, his liver is placed midline, and they could not find view of a spleen in his body. They had them explained to me that this goes hand-in-hand with CHD (sometimes even to the extent that parts of the heart are formed in a mirrored view of the normal heart). At this time, they suggested and referred me to Children's Hospital of Philadelphia (C.H.O.P) for further testing since CHOP. I had never been to CHOP and knew nothing really about it but they reassured me by telling me it was the first hospital in the United States dedicated to finding cures and treating illnesses and injuries specific to children and is one of the most notoriously top rated children's hospital in the entire nation. After attending my first FULL DAY appointment at CHOP I walked out with tons of new information in regards to Waylon's CHDs and Heterotaxy Syndrome along with a diagram of a normal heart, a diagram that was hand drawn by the clinical team, a diagram of a heart after the Glenn Bi-directional Procedure, and a diagram of the heart after the Fontan Procedure. I immediately went back home and researched and printed information off about every term or diagnosis the doctors and care team had mentioned or had given me and put them in a binder specifically for him. As I get closer to my 37 week induction date this Tuesday I worry and stress about his condition when he is born and his condition after they do the first surgery to place a pulmonary artery band in place. So, all my donations and steps will be a reminder or in honor of my son's upcoming journey! So, PLEASE, Donate or Register with my team today!