ALS LEAP (Lived Experience Advocacy Program)

Our Mission: Turning access to ALS education and research into empowered advocacy for the ALS lived experience community.

Please join us to improve access to ALS educational and advocacy conferences for individuals living with ALS and their caregivers both present and former.

Background:

ALS-related conferences and symposiums play a critical role in empowering people living with ALS and families/caregivers(present and former) with knowledge, community, and a stronger voice in advocacy. Unfortunately, financial barriers often prevent those most impacted from participating. Our goal is to close that gap by providing targeted financial support for conference registration, travel, and related expenses—so that more people can learn, connect, and ultimately become stronger advocates within the ALS community.