October 5th is PFIC Awareness Day. So, what is PFIC? Well, let me tell you.

PFIC is the name of my son, Cade's genetic liver disease. It stands for Progressive Familial Intrahepatic Cholestasis. It is very rare and it is pretty terrible. It is incessant. It is painful. It is under-funded. He was diagnosed at 4 months and lived with its horrible affects through the age of 16. It is marked by an extreme, relentless, full-body itch that is debilitating at times. It progressively gets worse, as its name suggests.

Nearly four years ago this September 23, Cade received a new liver -- a gift, that for him, erased most of the progressive effects of PFIC. He is doing so well. But, like the rarity PFIC is, it affects children so differently and there is a great need for awareness and further research around the globe.

The PFIC Network, started by a group of parents, focuses on raising awareness, accelerating research, advocacy, and connection between families. It is THE only global advocacy group for PFIC families. It is the ONLY place to go to connect families with children dealing with this disease to education, resources and most importantly, each other. I cannot understate their importance of the PFIC Network to families. In some countries, you may find ONE other child with the disease and ONE doctor who has heard of it. Families will be helped with increased awareness.

I am asking you to support something that means so much to our family. So on Cade's 4th anniversary of having a healthy liver, donated by a remarkable 7-year old girl (ZJ) and her family, I ask you to support the PFIC Network in his honor.

October 5th is PFIC Awareness Day. I will keep this fundraiser open through then. Whether you donate $5 or $50. Every little bit helps. Thank you for your support. Learn more at https://www.pfic.org/

Thank you!