PFIC Awareness Month: October

Campaign cover image for PFIC Awareness Month: October

$5,260

17% of $30,000 goal

72 Supporters

Charmaine Gravener

Fundraiser since Sep 2024

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$70

2 supporters

7% of $1,000 goal

Charmaine Gravener's Story

Tyler and Charmaine were both born with PFIC type 2 (ABCB11 deficiency). After years of the head to toe itching and symptoms of liver disease we started LivMarli October 28, 2014. "Our Miracle Drug" saved the kids from liver transplant, their liver labs stabilized and the itching finally stopped. Currently they are both healthy, happy and thriving. As a Board Member for the PFIC Advocacy and Resource Network I hope to bring all that I have learned about this condition over the last 20+ years to people who are just starting their journey. Your support allows me and our organization to do that. I appreciate anything you can offer to help us. As always thank you for your support!

Team Members

Event

OCT
1

PFIC Awareness Month

Tuesday, October 1 @ 12 AM EDT

In Person

Story

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Progressive Familial Intrahepatic Cholestasis Advocacy and Resource Network, Inc.

A 501(c)(3) Public Charity

EIN 83-1084501

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