BLEED FOR THE CAUSE

Bleed For The Cause is raising money to support the ongoing care for children born with CHARGE syndrome.

CHARGE syndrome is a recognizable genetic syndrome with known pattern of features. It is an extremely complex syndrome, involving extensive medical and physical difficulties that differ from child to child.

Babies with CHARGE syndrome are often born with life-threatening birth defects. They spend many months in the hospital and undergo many surgeries and other treatments. Swallowing and breathing problems make life difficult even when they come home. Most have hearing loss, vision loss, and balance problems that delay their development and communication. Despite these seemingly insurmountable obstacles, children with CHARGE syndrome often far surpass their medical, physical, educational, and social expectations. One of the hidden features of CHARGE syndrome is the determination and strong character these children display.

While extensive research has been conducted, there is still a lot to learn. Continued research is needed to help us understand the medical and developmental challenges facing individuals with CHARGE. This understanding leads the way to medical and educational interventions and therapies which help people with CHARGE syndrome overcome many of the obstacles in their lives.

100% of received donations will be given to the Center for CHARGE Syndrome at Rady Children’s Hospital.

To learn more about CHARGE syndrome please visit: www.chargesyndrome.org

To learn more about the Center for CHARGE Syndrome at Rady Children’s Hospital please visit: www.rchsd.org/programs-services/charge-syndrome/