My dedication to funding treatments comes from my personal experience as a mother of a child with Lafora disease. My daughter Angelina is now 20 and has been suffering with symptoms for 6 years. Lafora is quick to manifest and progress; we lose our children too fast. Please help us continue to #fightlafora by helping children like Angelina have access to this safety study and help find a cure. #PayItForward today!
#refractoryepilepsy #epilepsyawareness #glycogenstoragedisease #childhooddementia #raredisease #terminalillness
