There is an urgent need for patient led research initiatives to create a better understanding of patients with rare neurological diseases.

Your contribution will help to provide funding for patient research assessments and a robust natural history, led by the Lab of Dr. Wendy Chung, Chief of the Department of Pediatrics, Boston Children’s Hospital, Mary Ellen Avery Professor at Harvard Medical School and President of the Children’s Hospital Pediatric Associates. This will assist in creating a better understanding of the MEF2C patient community, clinical trial readiness and informed clinical care.

Your involvement is critical to our mission to accelerate treatments for our patients, and to create synergies within the rare neurological disease arena.

We are grateful for your support!

https://www.youtube.com/watch?v=Gev7NzAOBMU

MEF2C Natural History Study at Boston Children's Hospital

Accelerate MEF2C R&D For Treatments & A Cure

Team Members