A Year of Impact

In 2025, thanks to your generous support, Chelsea’s Hope grew our programming and research support efforts, including:

Bringing together more than 200 in-person and virtual participants at our 2025 Lafora Science Symposium to accelerate therapy development
Connecting 50 Lafora family members through our monthly support groups
Surveying more than 60 Lafora families through listening sessions and caregiver surveys to identify and address gaps in care for Lafora children
Hosting discussion groups with a network of 25 clinicians and scientists to identify biomarkers and recommended epilepsy medications for Lafora disease
Raising more than $319,000 to cover the clinical costs of the ION283 Safety Study at the University of Texas Southwestern Medical Center

Thank you for making an incredible impact in 2025!

We are looking forward to continuing our work in 2026. Together, we will unite the worldwide community, advocate for treatments, and take a step forward on the path to a cure.

Can you make a gift or pledge support to our mission in 2026?

Our Goal

Chelsea’s Hope is raising $15,000 by December 31, 2025, to make hope a reality for families facing Lafora disease.

We must ensure no family faces Lafora alone. Your donation will provide access to information, community, support, and hope.

Why Support Us?

If you are connected to someone fighting Lafora, you should be connected to us!

Chelsea’s Hope provides critical support, education, and advocacy for Lafora families. We bridge the patient community and research network to advance toward a cure. And we can’t do it without you!

We serve the Lafora community with care and integrity:

Chelsea’s HOPE for the Holidays

Help spread Chelsea's Hope this holiday season by giving!