Donate to Cure ALD

X-linked Adrenoleukodystrophy (ALD) affects 1 in 17,000 people, impacting the brain, spinal cord, or adrenal glands with varying severity. Young boys face the most devastating form—childhood cerebral ALD—which can be fatal without early intervention. While treatment options exist for some manifestations, there is no cure or preventative treatments. Since there is limited funding for rare disease research, funding for ALD research is heavily reliant on donations.

Cure ALD exclusively funds research aimed at curing ALD or preventing any symptom onset, and by empowering families as active contributors to the cause through both fundraising and direct action that advances treatment possibilities.

The inspiration for Cure ALD comes from the Wiener family, who in 2024, discovered that their three-year-old son had ALD after the mother took a genetic carrier screening test during a subsequent pregnancy. Confronting this devastating diagnosis, they quickly realized two critical gaps: (1) insufficient funding directed toward research focused on curing ALD or preventing symptom onset; and (2) a lack of resources to help newly diagnosed families take meaningful action in the fight against this disease.

Building Our Foundation

Cure ALD officially launched in August 2025, and we're building something meaningful from the ground up. Here's what you should know:

• Our Website: A comprehensive resource site will launch in early 2026, featuring research updates, family stories, and educational materials for the community.

• Tax-Deductible Donations: Cure ALD is a 501(c)(3) nonprofit organization. Tax ID: 39-4049060. Donations are tax-deductible to the extent allowed by law.

We appreciate your patience and trust as we establish the infrastructure to maximize our impact in the fight against ALD.