Donate to Cure ALD

X-linked Adrenoleukodystrophy (ALD) affects 1 in 17,000 people, impacting the brain, spinal cord, or adrenal glands with varying severity. Young boys face the most devastating form—childhood cerebral ALD—which can be fatal without early intervention. While treatment options exist for some manifestations, there is no cure or preventative treatments. Since there is limited funding for rare disease research, funding for ALD research is heavily reliant on donations.

Cure ALD exclusively funds research aimed at curing ALD or preventing any symptom onset, and by empowering families as active contributors to the cause through both fundraising and direct action that advances treatment possibilities. Find out more about Cure ALD.

The inspiration for Cure ALD comes from the Wiener family, who in 2024, discovered that their three-year-old son had ALD after the mother took a genetic carrier screening test during a subsequent pregnancy. Confronting this devastating diagnosis, they quickly realized two critical gaps: (1) insufficient funding directed toward research focused on curing ALD or preventing symptom onset; and (2) a lack of resources to help newly diagnosed families take meaningful action in the fight against this disease. Find out more about our story.