Dear Family and Friends,
I am starting this fund raiser for a near and dear family friend of ours to support “Cure Pogz Disorders Foundation”. I am supporting this parent-led organization as it is very close to our hearts.
I have known this family personally for years, and I can assure you that your contribution will make a meaningful difference. The funds raised will go towards developing a gene therapy for those affected by this rare genetic disorder and also will have a broader impact offering benefits to autistic children.
The earlier the intervention with a gene therapy, the better the outcomes.
If your company has a charitable matching program, please make the donation through your company so you can double the impact. Also, please share this story with your community via email or social media. We will have the greatest chance of saving the kids if we all activate our networks and encourage our friends, family and colleagues to give generously.
Your support will be life saving.