DEE-P Connections is dedicated to transforming support for caregivers of children with rare and severe epilepsies, also known as developmental and epileptic encephalopathies (DEEs) marked by difficult to treat seizures and developmental delays/regression.

This is your opportunity to help! Whether you’re here to donate or rally others to join the cause, you can help us make a lasting impact. Here are some great reasons to support DEE-P Connections.

Support DEE Families

DEE-P Connections offers families a comprehensive online resource center and access to expert-led webinars, providing essential tools to navigate the challenges of rare & severe epilepsy. Additionally, we offer opportunities for families to connect with other caregivers who understand this distinctive journey, providing not only support but also a critical lifeline. We are a free resource for all DEE families.

Uniting 45+ Rare Epilepsy Groups

By partnering with over 45 rare epilepsy organizations, DEE-P Connections has built a cohesive network that bridges knowledge gaps and ensures families benefit from our coordinated efforts. We take on this work so hundreds of patient advocacy organizations don't have to do it on their own, increasing efficiency.

Home for the Undiagnosed

DEE-P Connections is a home for families of children with severe, undiagnosed DEEs, providing a supportive community, guidance, and a path toward answers and empowerment as advocates for their loved ones.

Advocating for and Advancing Research Across DEEs

We do critical work to advance the understanding of DEEs and advocate for the community as a whole. We are on Capitol Hill, talking with lawmakers about the needs of our families, hosting sessions to highlight this community with the FDA and bringing together expert teams to advance research into and across the rare epilepsy/DEE community.

Support DEE-P Connections: Multiple Ways to Give

Your generosity helps build vital connections and support for families impacted by DEE. Did you know there are even more impactful ways to give? By contributing through stocks, cryptocurrencies, donor-advised funds (DAFs), or endowments, you can maximize your impact while enjoying unique financial and tax benefits.

Stocks: Donate appreciated securities and avoid capital gains tax while making a larger contribution.
Cryptocurrencies: Give securely and efficiently with leading digital assets.
DAF Grants: Recommend a grant from your donor-advised fund to support DEE-P Connections initiatives.
Endowments: Establish a lasting legacy with a gift that supports families for generations to come.

Learn more about these giving options and find the right choice for you.

Donating by Check?
Send your donation to:
DEE-P Connections - Donations
1234 Crittenden St, NW
Washington D.C., 20011
To have a tax receipt sent via postal mail, please send an email to info@deepconnections.net and include your mailing address. Checks can be made payable to DEE-P Connections.

Tax Information:
DEE-P Connections is a DBA of Decoding Developmental Epilepsies, a 501(c)(3) tax-exempt organization, Federal Tax ID 47-1822559. Your donation is 100% tax-deductible within the guidelines of U.S. law. Retain the email donation receipt for claiming a deduction on your U.S. taxes, which will be sent to you upon the successful completion of your donation.

Thank you for your support.

United For Rare Epilepsies

By DEE-P Connections

United For Rare Epilepsies

Year-End Drive

Team Members